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His reporting appears across NBC and MSNBC platforms. Engel linked to the memorial page in a follow-up post, writing, "Researchers are making amazing progress using Henry's cells to help cure RETT Syndrome so others don't have to endure this terrible disease. NBC News Richard Engels son Henry has died from disorder. In 2018, Engel wrote an essay for TODAY about the heartbreak and hope that come with caring for a child with Rett syndrome. 2023 FOX News Network, LLC. This story has been shared 13,615 times. You see a child who is helpless and who is sweet, and hes connecting with you, but he really is suffering from this disease. By Chloe Govan 17:50, Sat, Oct 1, 2022 | UPDATED: 17:52, Sat, Oct . [15] Engel worked for ABC News as a freelance journalist during the initial invasion of Iraq by U.S. forces. By studying Henrys cells several years ago, she learned that Henrys mutation affected the function of the MECP2 gene in such a way that it caused an important protein for brain development to be produced at lower levels. The father of two admitted he and his wife "were coping better before COVID," revealing that "school was the only place where [Henry] could interact with other children," which was a huge asset for him. "His quiet fight against this terrible disease was incredible. In June, Engel said Henry had taken a turn for the worse, developing dystonia, characterized by shaking and stiffness. Our Rett syndrome research will continue to push as hard as possible to develop treatments. What is most amazing, however, is the impact Henry had on so many of us at the Duncan NRI and on our Rett research. She also shared the link to donate to support research in Henry's memory. At age 13, he joined a wilderness survival camp where he learned about leadership and how to be more independent. Engel received the Medill Medal for Courage in Journalism for his report "War Zone Diary". Chrissy Callahan covers a range of topics for TODAY.com, including fashion, beauty, pop culture and food. "To parents with typically developing children, a little Dada may not seem like a big deal. In her free time, she enjoys traveling, watching bad reality TV and consuming copious amounts of cookiedough. It was really amazing watching them work as a team, Zoghbi said. Check out what's clicking on Foxnews.com. While many other children suffer from Rett Syndrome, Henry had a specific genetic mutation never seen before. Richard Engel's son Henry dead at age 6 after battling neurological disorder By Francesca Bacardi August 18, 2022 | 11:34am Richard Engel announced the heartbreaking news that his son. As a geneticist and researcher, Zoghbi also values the moment when Henry met her team of students and scientists researching a cure for Rett syndrome. . 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The journalist previously announced that Henry died from Rett syndrome a rare neurological disorder that affects the way the brain develops on Aug. 18, just five years after he was diagnosed with the incurable disease. And with a smile. 2019, Edward R Murrow Award for Continuing Coverage, Network News. Henry was special in so many ways. For an optimal experience visit our site on another browser. On . While describing the challenges Henry was facing, the journalist emphasized how lucky he felt to have Henry in his life. Richard Engel is an American journalist and veteran author currently serving as the Chief Foreign correspondent for NBC News network. [28] Engel covered all major milestones of the war, including the first free Iraqi election and the capture, trial, and execution of Saddam Hussein. He doesn't sit up straight. In a 2019 essay about his family, the proud father gushed about an important milestone Henry had just met. But even with all the difficult moments, there have been joyful milestones, too such as when Henry said Dada for the first time at 3 and a half years old. 9,366, 2023 NYP Holdings, Inc. All Rights Reserved Dr. Zoghbi and Henry from a 2019 TODAY segment. We always surrounded him with love and he returned it, and so much more," Engel wrote alongside a sweet photo of his son. Thank you everyone for all the kind messages, from Henry, our Mr. Handsome, he wrote in the caption. He had the softest blue eyes, an easy smile and a contagious giggle, the journalist, who is married to Mary Forrest,tweeted at the time. He nonetheless has drawn attention for being the son of Richard Engel, a multi-award-winning TV personality. Rett syndrome is a rare neurological disorder that affects the way the brain develops, according to the Mayo Clinic. [7] His father is Jewish, and his mother is Swedish. Georgia Slater. [29] Engel reported on events from different perspectives by gaining and maintaining frequent access to U.S. military commanders, Sunni insurgents, Shiite militias, and Iraqi families. I got some books, and the smiles I got from him he was happy, she said. What is most amazing, however, is the impact Henry had on so many of us at the Duncan NRI and on our Rett research. He had the softest blue eyes, an easy smile and a contagious giggle. Engel added he's looking forward to life as a "Dada"of two. Engel linked to the memorial page in a follow-up post, writing, "Researchers are making amazing progress using Henry's cells to help cure RETT Syndrome so others don't have to endure this terrible disease.". Fox News Flash top headlines are here. Thats really my last memory during his last visit., This is the memory Ill always hold dear because he reacted to the books we gave him and the toys. [citation needed] Having escaped after five days in captivity, Engel said he believed that a Shabiha group loyal to al-Assad was behind the abduction, and that the crew was freed by the Ahrar al-Sham group five days later. Engel also opened up about the feeling of watching his younger son surpass Henry in developmental milestones. His condition progressed and hes developed dystonia: uncontrolled shaking/ stiffness. His loving and endearing smile, and the way he connected with his eyes, stole my heart from the time I met him. "We don't want anyone else to go through this. The son of NBC News chief foreign correspondent Richard Engel,Henry Engel, diedeight months ago at age 6 but hes still at the center of the research that will hopefully prevent other children from losing their lives to the neurological disorder Rett syndrome. Fox says Parkinson's battle getting 'harder': 'I'm not gonna be 80', Padma Lakshmi claps back at trolls: 'I have boobs, I have nipples', Kendall Jenner rocks sheer top, fur mini skirt for date night with Bad Bunny, Miley Cyrus mom, Tish Cyrus, engaged to Prison Break star Dominic Purcell, Fans confused over Lala Kent, Ariana Madixs White House dinner appearance, Woman has 'loud and full body orgasm' during LA Philharmonic concert. Engel opened up on the "Today" show in Marchwith an emotional essayabout his first son, Henry, finally saying "Dada" after being diagnosedwith Rett Syndrome, a rare genetic neurological disorder that leads to severe physical and cognitive impairments. [1] He was assigned to that position on April 18, 2008 after serving as the network's Middle East correspondent and Beirut bureau chief. Tributes and condolences poured in for Engel on Twitter after he shared the heartbreaking news. [citation needed] He frequently traveled outside Iraq's Green Zone, the fortified international zone in central Baghdad, to report on the genuine state of Iraqi life.[30]. Sitemap, Your California Privacy Rights We've received your submission. [15][16] He filed a number of reports from Lebanon during the 2006 Lebanon War. She is also working on her first novel, a domestic drama set in rural Regency England. [53], Engel was married to a fellow Stanford student; the couple divorced in 2005. [31] He spent years covering what he often describes as one of the most important stories of his generation, the Iraq War. David Rutz is a senior editor at Fox News. His cells are being used in cutting-edge research. Richard and Mary Engel, with son Henry on Wednesday, October 3, 2018. Zoghbi attributes in part to his parents the fact that Henry lived longer than most boys with the disease. The institute's Dr. Huda Zoghbi, who studied Henry's mutation, called him "special in so many ways. We will keep fighting for you.". Richard and Mary Engel, with son Henry on "TODAY" on Wednesday, October 3, 2018. "This is Theos first chapter, and a new one for our family. Richard Engelhas some personal news to report. His quiet fight against this terrible disease was incredible. He was also unlucky, born with a rare genetic disease called Rett Syndrome.". [20] The same year he toured and reported on the city of Mogadishu, Somalia, for a segment titled "The World's Most Dangerous City", for which he would receive a News and Documentary Emmy Award nomination. Engel, 48, shared earlier this summer that Henrys condition took a turn for the worse after developing dystonia, a movement disorder in which your muscles contract involuntarily, causing repetitive or twisting movements, per the Mayo Clinic. Georgia Slater is a writer/reporter on the Parents team at PEOPLE. If were successful, that can help so many patients. And Henry could still help Zoghbi give these patients and their families what theyve been waiting for. Over the years, Engel has shared regular updates on his son's condition with the TODAY team and has been candid about the struggles and the joys of parenting a child with special needs. Legal Statement. "He was in the hospital for 6 weeks, but is now home and getting love from brother Theo. The condition also led to dystonia, an uncontrolled shaking/stiffness. He had the softest blue eyes, an easy smile and a. Henry is continuing to help find a cure for the disease that eventually took his young life. Henry was first diagnosed with Rett Syndrome, a rare genetic neurological disorder that leads to severe physical and cognitive impairments and has no cure, as of yet, in 2017. [3] He speaks and reads Arabic fluently and is fluent in Italian and Spanish. Get all the stories you need-to-know from the most powerful name in news delivered first thing every morning to your inbox. He had a tremor. Henrys physician, Dr. Huda Zoghbi, discovered the genetic cause ofRett syndromeand, years later, she found that Henry had a one-of-a-kind mutation to the gene that causes the syndrome. [25] Engel's latest documentary, Ukraine: Freedom or Death [26] aired on April 22, 2022 and covered the first two months of the 2022 Russian invasion of Ukraine. Thanks for contacting us. [17], In 2009, Engel was stationed in Kabul, Afghanistan, covering the country's August presidential election. Thats the nature of this disease.. Legal Statement. [77][78] Henry Engel was born with Rett syndrome, a genetic disorder that is extremely rare in males; he died in August 2022 at age 6. It also caused numerous underlying health conditions including impacting his breathing," he continued. Longtime NBC News foreign correspondent Richard Engel announced Thursday that his 6-year-old son Henry had died after a lifelong battle with a rare brain disorder.
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